Caregiver Support Groups

    Caregiving is one of the most demanding things a person can do. You don't have to do it alone. Central Illinois has a strong network of support groups for family caregivers — and online communities available around the clock.

    Why Support Groups Matter

    Studies consistently show that family caregivers who participate in support groups experience less depression, less anxiety, and significantly lower rates of caregiver burnout than those who go it alone.

    The benefit isn't just emotional. Support groups are where caregivers learn practical strategies from people who have already faced the same situations — how to handle a parent who refuses to bathe, how to navigate a difficult physician conversation, how to talk to siblings who aren't helping.

    You don't need to be in crisis to benefit. The best time to join a support group is before you desperately need one.

    40%
    of caregivers experience clinical depression
    70%
    report high levels of stress
    1 in 5
    caregivers report declining own health
    60%
    feel less isolated after joining a support group

    Central Illinois Support Groups

    Alzheimer's Association Illinois Chapter — Caregiver Support Groups

    Dementia / Alzheimer's

    Support group meetings for caregivers of people with Alzheimer's and other dementias, offered in communities across Central Illinois and virtually. Facilitated by trained volunteers. The 24/7 Helpline can point you to the group nearest you.

    Central Illinois communities and virtualWeekly and monthly meetings available1-800-272-3900

    Senior Services of Central Illinois

    General Senior Care

    Springfield-based nonprofit serving older adults and their families with programs that help seniors stay independent at home. Ask about caregiver support and related services available in your county.

    Springfield and surrounding countiesOngoingContact the Springfield office

    Illinois Department on Aging — Senior HelpLine

    General Senior Care

    Statewide information and referral line. Connects family caregivers with their local Area Agency on Aging and Caregiver Resource Center for support groups, respite options, caregiver training, and programs like the Community Care Program.

    Statewide, including all of Central IllinoisWeekdays1-800-252-8966

    Parkinson's Foundation Helpline

    Parkinson's Disease

    Helpline specialists answer questions about Parkinson's and can help people with Parkinson's and their caregivers find support groups and resources in Central Illinois.

    Referrals to local and virtual groupsWeekdays1-800-473-4636

    Hospital Family & Caregiver Education

    General Caregiving

    Central Illinois health systems, including HSHS St. John's Hospital and Memorial Medical Center in Springfield, OSF Saint Francis in Peoria, and Carle in Champaign-Urbana, offer patient and family education. Ask your loved one's case manager or social worker about current caregiver classes and support sessions.

    Springfield, Peoria, and Champaign-UrbanaVaries by programAsk your hospital case manager

    Filipino-American Community & Parish Networks

    Cultural / Community

    Filipino-American families in Central Illinois often find support through local Filipino community associations, church and parish groups, and informal networks of fellow families caring for Filipino elders.

    Central Illinois Filipino communityCommunity-basedThrough local community and parish groups

    Online Support Communities

    Available 24/7 — especially valuable for caregivers who can't leave the house or need support outside normal hours.

    Alzheimer's Association ALZConnected

    24/7 online community for people living with Alzheimer's and their caregivers. Message boards, online support groups, and the option to connect locally.

    www.alzconnected.org

    Caregiver Action Network — Online Community

    National network for family caregivers of all kinds. Online forums, educational webinars, and a peer support community.

    www.caregiveraction.org

    AARP Caregiver Community

    AARP's online caregiver community with forums, live chats, and resources specifically for family caregivers.

    www.aarp.org/caregiving

    Reddit r/dementia

    Active online community of over 100,000 members — caregivers, family members, and people with dementia sharing experiences, advice, and support 24/7.

    www.reddit.com/r/dementia

    Teepa Snow's Positive Approach to Care Community

    Educational and support community built around Teepa Snow's evidence-based dementia care approach. Online groups and webinars.

    teepasnow.com

    Self-Care Is Not Optional

    Name What You're Feeling

    Grief, resentment, guilt, love, exhaustion — caregivers feel all of it, often simultaneously. Naming your emotions without judgment is the first step to processing them.

    Schedule Respite Regularly

    Respite care isn't a luxury — it's preventive medicine for caregiver burnout. Even a few hours per week makes a measurable difference in your own health and the quality of care you provide.

    Don't Carry It Alone

    The single most important thing you can do is connect with other caregivers who understand. No one who hasn't done this work fully understands the weight of it — but other caregivers do.

    Ask for Specific Help

    When people say 'let me know if you need anything,' they mean it — but they don't know what to do. Give them a specific task: bring dinner on Tuesday, sit with mom for two hours on Saturday.

    Let Us Give You a Break

    Our respite care services exist for exactly this moment — to give you the time to attend a support group, rest, or simply breathe. Your loved one will be in safe, compassionate hands while you recharge.